Not a Ghost, Just Glowing: My Story of Albinism and Success
I remember the first time someone called me ‘ghost’ in school. At that moment, I could either cry or laugh. I chose to laugh and asked if ghosts do their homework.
Hi, I’m Tanush Soni from Kolhapur, Maharashtra, and I’m an albino. Growing up, I learned that life isn’t about hiding in the shadows but shining brightly. I’ve faced my fair share of challenges, but I always believed in turning obstacles into opportunities.
As a child, I endured constant teasing and stares due to my unique appearance. Albinism, a rare genetic condition, affects about 1 in 17,000 people worldwide . In India, the lack of awareness and understanding made it even harder. My pale skin, light hair, and visual impairment set me apart, often making me the center of unwanted attention. But instead of letting it break me, I used it as fuel to grow stronger.
Initially, I struggled with self-esteem. However, I discovered my love for talking to people, which became my refuge. Engaging in Model United Nations (MUNs) and debate competitions helped me channel my thoughts away from insecurities and toward something I was genuinely passionate about. Winning national-level debate competitions was a turning point. It made me realize that my voice could make a difference.
When you’re albino, every day is a lesson in resilience. I learned to navigate social situations with humor and patience. In public spaces, I often faced curious glances or even intrusive questions. Instead of reacting negatively, I chose to educate others about albinism. Humor became my shield and my way of connecting with people.
I’m now heading to The Hague to study Public Policy, a journey that seemed impossible a few years ago. This transition wasn’t easy; it was a result of continuous learning, perseverance, and a belief that I could turn my ‘disadvantage’ into a unique advantage. My experiences shaped my desire to advocate for inclusivity and awareness.
Albinism affects individuals differently. Some may have severe visual impairments, while others face less obvious challenges. Education and awareness can make a significant difference. Organizations like the Indian Albinism Foundation play a crucial role in spreading awareness and providing support . They educate people about the condition and promote the acceptance of individuals with albinism in society.
To anyone struggling with similar challenges, know that your uniqueness is your strength. Embrace it, and use it to forge your path. Life’s difficulties are like debates – you might not win every round, but every experience makes you stronger and wiser.
In conclusion, my journey as an albino in India has been a blend of hardships and triumphs. From overcoming daily struggles to achieving my dreams, I’ve learned to turn adversity into opportunity. Remember, it’s not about fitting in but standing out and making a difference. How will you use your unique story to inspire others?