Summary
Children and teens with albinism in India often face unique challenges, including visual impairments and sensitivity to sunlight.
This article explores how they can engage in hobbies, extra-curriculars, and sports that cater to their needs, featuring real-life
stories and actionable advice. It highlights the support available, the importance of spreading awareness, and practical steps to overcome challenges.
Finding Passion and Purpose Through MUNs:
Growing up in Kolhapur, Maharashtra, I, Tanush soni, often found myself intrigued by the idea of the modern united
nations (MUNs). With albinism, the prospect of outdoor sports was daunting due to my sensitivity to sunlight and
visual challenges.
However, I discovered a different path in school through MUNs, where I could debate, negotiate,
and represent countries, which soon became my passion. This hobby not only provided a safe environment but also
ignited my dream of working at the United Nations someday. Through MUNs, I learned that even with albinism,
we can find hobbies and aspirations that fit our unique needs and lead us to bright futures.
Embracing Hobbies with Albinism
For children and teens with albinism in India, engaging in hobbies is both a source of joy and a means to build confidence. Visual
impairments and sensitivity to sunlight can make outdoor activities challenging, but that doesn't mean they have to miss out. Indoor hobbies
like reading, music, and arts and crafts can be incredibly rewarding.
For example, Kavita, a teenager with albinism, discovered a passion for painting. With low-vision aids and proper lighting, her art flourished,
allowing her to express herself and gain recognition in her community.
Consider me, Tanush Soni, being an albino, I had limited choices at the start, but I found ways to keep myself entertained. I realized poker is
my sweet spot in entertainment and mind-building. Apart from that, I have been collecting coins for the last 12 years and have rare pieces in my
collection, like the 1616 Half Anna by the East India Company.
Extra-curricular Activities: Adapting and Thriving
Participation in extracurricular activities helps children with albinism develop social skills and find their niche. Schools and community centers
should consider inclusive programs that cater to their needs.
For instance, Shalini, who loves dancing, initially struggled with stage performances due to her sensitivity to bright lights. However, her school arranged
for performances in dimmer lighting, allowing her to shine without discomfort. Similarly, for me, participating in MUNs (Model United Nations) allowed me to
visit almost all corners of India, talking to people from different Indian states and winning those competitions.
The Indian Albinism Foundation advocates for such inclusive practices and offers resources
for educators and parents. By raising awareness and providing training on accommodating children with albinism, schools can ensure that no child is left out.
Sports: Breaking Barriers and Building Strength
While sports might seem daunting for children with albinism due to visual and skin sensitivity issues, many find ways to participate and excel. Indoor sports
like table tennis, badminton, and swimming are excellent options.
For example, I have always loved swimming. I use UV-protective swimwear and practice in indoor pools to manage my condition effectively.
Practical Tips for Parents and Educators
- Visual Aids: Provide magnifying glasses, large print materials, and audiobooks for hobbies and studies.
- Sun Protection: Encourage the use of hats, UV-protective clothing, and high-SPF sunscreen during outdoor activities.
- Inclusive Programs: Work with schools to develop inclusive programs that accommodate children’s needs without singling them out.
- Awareness and Training: Utilize resources from organizations like the Indian Albinism Foundation to educate about albinism and implement supportive measures in schools and communities.
Spreading Awareness and Building Community
Awareness about albinism in India is crucial for fostering an inclusive society. The Indian Albinism Foundation and similar organizations play a key role in
educating the public and advocating for the rights of individuals with albinism. By sharing stories of success and creating support networks, we can help children
with albinism lead fulfilling lives and pursue their passions.
Conclusion
Children and teens with albinism in India can thrive in hobbies, extra-curriculars, and sports with the right support and adaptations. Their journeys, though filled
with unique challenges, are also marked by resilience and creativity. As a society, it is our responsibility to create an inclusive environment where every child,
regardless of their condition, can dream big and achieve their goals. How can you contribute to making this vision a reality?